Food

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Saturday 13th to Sunday 14th October

It seemed to end up being a weekend of eating out! Lucky old me.

Handy really as I haven’t really been feeling too much like eating! It’s horrible when you have no appetite and you’re just making yourself eat things because you know you should have something. I did really enjoy both of these meals though πŸ˜‹

On Saturday there was a nice walk around the city of Oxford.

Where I think I worked up a bit of an appetite and I had some of my favourite noodles. When I’ve been to Noodle Nation before I was able to have an extra portion of cashew nuts stirred into the noodles too but when I looked this time they were nowhere to be seen on the menu and when I asked the waiter he said that they couldn’t do that! I really missed them ☹️

And then on Sunday I ended up going into Banbury with Robyn and met Leah after she had done an extra shift at work.

We went toΒ The Old Auctioneer pub.

The Old Auctioneer is the third oldest building in Banbury, built in 1596 and surviving the great fire of 1628. The site dates back to medieval times and was originally known as Groupcunt Lane in 1333 reflecting the economic activity and function of the street before being renamed Parsons Street in 1410. The pub became known as The Flying Horse and in the 1830’s as many as 53 coaches left the pub for London weekly, taking seven and a half hours to make the journey. The floor boards at the front of the building by the fireplace are believed to be the original boards as are the beams above, which reputedly were sourced during the original construction from a wrecked Spanish Galleon. The bar panelling was constructed from old French fort doors sourced from Fort Saint-Andre just outside Avignon. The foreign exchange sign over the reception came originally from Coutts bank (the Queen’s bank) in the Strand. The wood panelling in the centre section was salvaged from American World War 1 ammunition crates.

A tiny bit of history for you.

I do recommend the place, the food was freshly cooked and very nice πŸ‘

A very tasty chicken burger for me!

Taking all my blood πŸ’‰

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Saturday 6th to Friday 12th October

Still SO tired.

I don’t think I’ve mentioned it before but I’ve started to go swimming now πŸŠβ€β™€οΈ Leah is on one of her fitness kicks and has joined the gym again. When she’s not in the gym she goes swimming so I’ve decided to join her. It’s a bit tough getting my body into the mood for it. As it’s getting colder now that puts me off a bit too as the pool is not the warmest of places! But once I’m in there I really enjoy it and I do feel in a much better frame of mind when I’ve finished πŸ™‚

I told my doctor a few weeks ago that I was finding things a bit of a struggle. He told me to book a blood test. Well as usual, naughty old me didn’t book it straight away. But on Tuesday I went to have it done. Three attempts for the nurse to get my veins to give out some blood πŸ’‰πŸ’‰πŸ’‰

On Thursday night I got a message to contact the doctors so early on Friday morning, while walking to work, I rang to be told that from my blood results the other day they could see that I had become anaemic again and that my doctor wanted me to have some extra blood taken so that the results would be back for an already booked appointment that I have with him next week. Sorry work, not much I can do about that 😏 Thankfully my boss agreed to let me go. So in the middle of my shift I left to walk up to our health centre, which is on the outskirts of the town. Trust it to be a cold, wet, very windy and miserable day 🌧 πŸ’¨ Not a pleasant walk. Two attempts for the nurse to get my blood this time πŸ’‰πŸ’‰, then back out into the cold and wet and straight back to work I go, with soggy trousers and feet. Not really what you need to be doing when you’re already cold and tired out.

And just because I think these little pasta people are very cute! 😍

🀣

Will he find the conker?!

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Monday 1st to Friday 5th October

National Cake Week (This was founded by Lynn Hill in 2011, with the sole purpose of celebrating and sharing a whole cake together with family and friends.) What a good idea she had! But trust me, usually the biggest lover of cake, to not feel like actually eating any cake until Thursday, when I treated myself to a bit of carrot cake after volunteering. Then Robyn, who had been teasing me all week by sending me pictures every morning of delicious looking cakes, surprised me with actually buying me a piece of carrot cake on Friday! Double yum πŸ˜‹ πŸ˜‹

I’ve just been SO tired at times again. Getting up, ready and out the door for a certain time in the morning, and then walking three quarters of a mile to work is pretty tough going for me sometimes. My body just doesn’t want to do it! And it’s SO frustrating πŸ˜– I have so much that I need and want to do. Usually I fight against myself to keep on going, but just lately sometimes I have no choice but to give in and leave it all. My head and body just won’t seem to work.

Volunteering was a bit tough on the emotions this week ☹️ As it was another nice day I went for a walk in a local park afterwards to try and help my head a little. I watched this squirrel, collecting his conker, nibbling through the shell until he actually found the conker and then burying it. I was so close to him and he really didn’t seem to mind. It was quite fascinating really. I hope he remembers where he’s buried it and goes back to it before the Spring, when it will start to sprout and it will no longer be good enough for him to eat 😏

Hello Rosie the elephant 🐘

I saw you on my journey back from volunteering today πŸš—

Warm β˜€οΈ

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Monday 24th to Friday 28th September

Some lovely weather this week.

So I made sure that I spent some time pottering about doing little odd jobs in the garden so that I was able to enjoy some of the warm sunshine β˜€οΈ

There were also some lovely walks

and some lovely sunsets

Photographer Pinny! πŸ‘πŸ“Έ

By the way Happy Birthday to Hannah on the 25th! πŸŽπŸŽ‚

Bingo

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Saturday 22nd to Sunday 23rd September

Saturday was a rainy day 🌧

In the evening it was time to watch another Anthony Joshua boxing match πŸ₯Š !

Sunday evening was spent at the bingo! Something different to do for Hannah’s upcoming birthday. First of all I got told off for talking while the numbers were being called out (I was only trying to find out how the touchpad worked) and then trust me to make an idiot of myself as well and shout out for a false claim! Yes I had two full lines crossed off but they needed to be on the same card, not different ones! It’s not like I’ve never played the game before, I know what you have to do. Dunno what came over me 🀣 I’ll blame it on the touchpad we were using, it did confuse me. Or maybe I’ll just blame it onto brain fog πŸ€ͺ

Anyway, it seems like I got punished for doing that because each one of the four others I was with won some money for getting lines or full houses (Robyn even won just over Β£70, lucky thing πŸ’·) – but not me, I won nothing πŸ™ƒ

I thought I would share with you this interview with Dr James Boyer which I have come across from the American Liver Foundation,Β 50 years of treating PBC.

And for something completely different – The Golden Bridge

Mop Fair 🎑

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Friday 14th to Friday 21st September

Chipping Norton Mop Fair was in town this weekend.

“The mop fair was also originally known as a hiring or statute fair, and was where farm workers and servants would gather with an item depicting their trade, and a tassle on their lapel, which became known as a β€˜mop’.

Employers would come and choose the worker they wanted to employ for the next year, and would give them a β€˜hiring penny’ to signify an agreement. The worker could then spend the money they had been given at the fair’s stalls.”

I wonder what they would think if they could see the kinds of rides that come to the Mop Fair now!

I’ve got nothing else really to report apart from the fact that I spoke to Dr Fisher over the phone about a few things and he had looked at my blood pressure results from when I was wearing my monitor the other day and he said it was fine, the average was not too low, so my medication for this just stays the same. But he does want to check my bloods as I’ve been feeling SO tired and have been struggling a bit πŸ˜–

Exercises

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Saturday 8th to Thursday 13th September

It turned out to be a bit of a ‘reminiscing’ weekend!

On Saturday we had gone to a shop in Witney. I knew we were somewhere near so I got Gary to take me back to the little car sales garage where we had gone one Saturday afternoon back in February 2015. Well I stayed in the car that day, I was feeling very ill, while he was looking round all the cars with Emma. It was then, when driving home in the car in the early evening, that I got the call from the Queen Elizabeth Hospital to say that they had a liver for me πŸ˜–

On Sunday we went for a walk around in Oxford. It turned out to be a lovely warm and sunny afternoon. It was also Open Doors weekend. This is the time when “many of Oxford’s significant contemporary and historic buildings open their doors to the general public, many of which do not usually do so. Discover hidden areas that are normally closed, climb tall towers or explore secret rooms.”

While we were just walking around there we met and said hello to the consultant that, after a couple of hospital stays to drain the ascites (a build up of fluid) told me that it was looking like transplant time and she was the one that contacted Birmingham to get the process started πŸ˜–

Sunday was also International PBC Day, a time to raise awareness. Thank you to the British Liver Trust for sharing my story again.

I still haven’t been feeling 100% and just so exhausted. I really don’t know why I agreed to work overtime one day 😩

I finally had my physio appointment for my hip. Apparently it was noticeable that I had much more movement on the other side. I’ve been given some exercises to do to see if that helps – just got to get myself to do them now …

And I finally had made the appointment to have another blood pressure monitor fitted. If I remember rightly it’s just to check how it’s doing and if I need to change the dose of medication I take. When she took the first reading it was very low. I think it did go up a bit throughout the day but as it blew up on my arm every half hour I really didn’t bother to have a look at every reading. I’ll just wait for the results.

😴😴

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Friday 7th September

This is my two precious girlies back in 2015 when they were waiting for me to come out of theatre from my first transplant.

They were quite simply amazing during the whole time I was very ill. It must have been so tough for them. But they kept me going, rubbing my legs, ‘fanning’ me as I was so hot, whatever else I demanded, I was not an easy patient during my crazy times. They gave me a good telling off for this too πŸ˜–

One of the reasons I’ve picked this picture to go on here is because it reminded me of myself now, still sleeping on the sofa! Normally I sleep really quite well on it but last night I just could not seem to sleep for any length of time, I kept waking up, I needed the toilet, I was so hot! Not what I needed really as I had decided to try and go back to work today after not being well this week. I survived it! πŸ’ͺ πŸ˜€

So if you would like to become someone’s hero, why not register here right now on theΒ NHS Organ Donor Register πŸ‘