Monthly Archives: April 2018

Jetwashing

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Saturday 14th to Wednesday 18th April

A sunny Saturday and a trip out to a few shops and then to the garden centre. A couple of new flower pots for my garden were bought!

The horses that I picked for the Grand National didn’t win! ☹️

On Sunday I asked Gary if he would jetwash my patio garden for me. It had got really grubby over the winter and was quite slippy in places. Of course I wanted a go, it was fun!

My sister Lynda and her husband John have just bought a caravan. The most unlikely couple that you would think to do this! They are going to store it at a campsite nearby. I went to visit on Monday as they had pitched it there for a night so that they could have a fiddle about with everything to see how it all worked and try and get used to it a bit. They decided they were going to attempt to put the awning up. They had never done this before and they had no instructions! I was going to make a quick exit but kind of got roped in to help! If only you could have been there … None of us thought it was a windy day until we got this awning half attached to the van. It was flapping about so fiercely, which did not help at all while we were trying to figure out where the poles went. John was not a happy man 🤬🤣 It was very soon packed back into the bag with no success 🤯

After work on Tuesday I went for a nice walk across the fields with a friend. As it was going to be muddy I wore my wellies. The walk was two and a half miles. My toe was SO incredibly painful afterwards. I’ve obviously walked much further than this before, so it wouldn’t have been because of the length of the walk. So I don’t know if walking in my wellies caused the problem 🤔 They don’t usually affect it in this way but I was really suffering 😰

As always, thinking of my dad today. 24 years since he has been with us 😰

When Gary wanted to walk on Wednesday I wasn’t intending on going very far as my toe was still so very painful. I still did two miles though! But it was really very annoying as it was a lovely warm and sunny afternoon 😠 I would have liked to have stayed out so much longer.

Is my appointment with the podiatrist ever going to arrive?

When I saw Lynda on Monday I had given her some of our overripe bananas that no one would eat.

What a nice surprise to find on my doorstep 😀

Blocked ears!

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Tuesday 3rd to Friday 13th April

So April so far has been pretty straight forward!

Working and volunteering. Though I did feel rather strange at times as I think my ears were a bit blocked or something! Lots of echoing and mumbling background noise which I couldn’t really make any sense of 🤔

Sometimes I may not have much to write about but I do think that there is always too much for me to think about.

🤯 “My brain is like an Internet browser. 17 tabs are open. 9 of them are not responding. Thousands of popups.” 🤯

It’s been nice to be able to go on a few longer walks as the evenings are getting lighter.

Happy 50th Birthday to Gary. A meal out with Emma and Jamie, I had some really nice 🐠 and 🍟

University Hospitals Birmingham – one of the top ten centres in the world for liver research, treatment and transplantation. Well they certainly did a good job when I needed them 3 years ago 😀

I have heard from elsewhere about this new drug that has become available and have been wondering to myself if maybe I should change from the ursodeoxycholic acid, which I took for many many years before my transplants and have already gone back onto it now. Something to speak to Professor Hirschfield about when I see him at my next clinic appointment I guess.

Record number of organ donors – thank you to all the donors and their families, who have the final decision to make at a very tough time.

Easter weekend

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Friday 30th March to Monday 2nd April

The Easter long weekend 🐣

Good Friday for me was spent at work.

The rest of the weekend consisted of a visit to Charlbury for a lunch of spag bol! 🍝, a walk down to the local pitch to watch Robyn’s boyfriend play football and later we watched the Anthony Joshua boxing match 🥊

An egg hunt at Julie’s and a music quiz in the Blue Boar with some drinks in the Crown & Cushion after 🍷

A cooked breakfast out and a walkabout in Banbury.

During our drive we came across Traitor’s Ford. Look at the difference in the water level from the pic of the ford which was in the link compared to the one I took.

As you can see it’s rather flooded from all the rain we’ve been having. It was fun driving through it though 🌊

Thank you Robyn and Leah for my Easter pressies 🎁

I’m really not too sure why I read the story about Scotland’s oldest organ donor in an online American newspaper! 🤔 But this just goes to show that you are never too old to help someone else. This 107 year old lady saved someone’s sight. How amazing is that?

Tired 😵

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Wednesday 21st to Thursday 29th March

During this time we’ve had some nice sunny days and some heavy rainy days! 🌤🌧

I’ve had some feeling fed up days, times when I just can’t concentrate on a single thing, which makes me very frustrated and even more fed up, and I’ve just been so very, very, very tired. Yes, even more than normal, if that’s possible 😵

I came across this tiny article!

“At last I found a good explanation of the difference between fatigue and being tired.

Fatigue is often confused with tiredness. Tiredness happens to everyone – it’s a feeling you expect after certain activities or at the end of the day. Usually, you know why you are tired and a good night’s sleep solves the problem.

Fatigue is a daily lack of energy; it is excessive whole-body tiredness not relieved by sleep. It can last for a short time (a month or less) or stay around for longer (six months or longer). Fatigue can prevent you from functioning normally and gets in the way of things you enjoy or need to do.”

Fatigue is a symptom of PBC. Some days I think okay, maybe I am just tired. But other days I think it is probably a bit more than that, the dreaded fatigue. It’s tough 😖

On Thursday 22nd I had to go for another hysteroscopy and biopsy, to check for any more changes in the cells due to my previous diagnosis of hyperplasia. (An increase in the number of cells in an organ or tissue. These cells appear normal under a microscope. They are not cancer, but may become cancer).

I had to be up extra early so that I could get a lift into Banbury with Leah. This meant that I was very early for my actual appointment time, so at 7.38am I went for a 1.78 mile walk! 😱 Good job it was a lovely sunny morning.

Thankfully I didn’t need to go into the operating theatre for my procedure (this made me a little scared the last time 😫). And it was over and done with a lot quicker than before. I never really used to bother too much but now I just don’t like having anything at all done to me anymore. The nurse made me a cup of tea and then I was able to leave. Let’s hope the results are good ones!

I walked back into town and treated myself to a coffee and a nice walk by the canal before I caught the bus home.

A sunny Sunday afternoon and a walk with Robyn – we were now able to go up the ‘snowdrift’ lane!

It’s finally back to its normal self!

Painful fingers

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Tuesday 13th to Tuesday 20th March

So very, very tired for work after my trip to Birmingham yesterday.

Wednesday, a day off when I spring cleaned a window frame!!! and visited a friend (I used to childmind her daughter from when she was just a tiny baby until she was about 3 or maybe 4 I think 🤔)

On Thursday I did 3 separate walks! One of them was only a mile long but my tracker made the shape of some walking legs!

For a little while on Sunday evening I sneaked in to Leah’s bed (it was so extremely cold and was starting to snow again 😱) and was listening to her music which she always has going when she’s at home. She plays a real mixture, some of my favourite ones from the charts, some of all of our old favourites to bring back some memories. All 3 of us love to listen to Leah’s music from whichever room we might be in the house!

A visit to Dr Fisher on Monday morning, who told me that the results of the X-ray on my hip were fine, so now to wait for the ultrasound.

In the afternoon I needed to take my car back to the garage in Banbury ready for tomorrow, when they were going to replace the seal above the window which they recently repaired, as it was loose. Then the idea was for me to get a lift back home with Leah when she finished work. I left the car and started the reasonably long walk into town. The garage then rang to say that they had already done the seal and did I want to just come back and collect it now! So I turned around and walked back to the garage. I checked the seal, to me it didn’t look like it had been fixed, they had just tried to squeeze it back in, they certainly didn’t have time to fit the new one. So the manager came and looked, I explained that it was booked in for tomorrow really and he agreed that it was not good enough and could I leave it to be sorted properly tomorrow as planned! So back off I set again for the walk into town to meet Leah. There’s nothing I like better on a very cold early evening than walking back and forward, back and forward through the back streets of Banbury! 😫

I collected my car again after work on Tuesday 🚗 It’s not a perfect job, but at least it has the new seal on it now 😏

Raynaud’s disease, just another delightful condition for me to deal with! Do you suffer with it yourself, have you heard of it? Here’s a pic of how my hands looked on Sunday.

I will be glad when this long cold winter has finally ended. Although, as it says in the above link, it doesn’t have to be that extremely cold for my poor fingers to suffer 🖐

I do think that if I lived in a warm, sunny country a lot of my problems would just disappear! 🏝