Monthly Archives: September 2019

PKD

Standard

Monday 16th to Sunday 22nd September

What some very warm and sunny days we’ve still been having β˜€οΈ

I spent some time in the park after volunteering, just look at that amazing blue sky.

I found the following article on Kidney Research UK’s Facebook page –

As September is PKD Awareness Month, we’re excited to share some research which could bring hope to 12 million people living with autosomal dominant polycystic kidney disease (ADPKD) around the world.

Scientists from The University of Sheffield and the USA are developing a new class of drug to treat ADPKD, a hereditary disease and a major cause of kidney failure. We’ve funded around Β£70,000 to help the Sheffield team gain the skills and knowledge to contribute to the project, testing a new compound in the lab to treat ADPKD.

ADPKD is caused by a genetic fault that stops kidney cells developing normally and causes cysts to form inside the kidneys. These fluid-like blisters grow and eventually destroy normal kidney tissue and the kidneys stop working properly.

Click on research to find out more.

This is the disease that my two girls have inherited from their father 😏 So let’s hope that this new treatment becomes a great success 🀞

Turkey shed

Standard

Thursday 12th to Sunday 15th September

I walked 7.78 miles in total on Thursday! If you have a muddled head and just can’t concentrate on anything my advice is – go out for a walk πŸ‘£

A bit of my Sunday afternoon was spent by the river in Bourton on the Water.

Bit of a waste really as I only ate half of them 😏

It was nice to sit out in the warm September sun for a little bit though.

Back in May I showed you this – My Ecobricks video πŸ“Ή

As promised, below is a picture of the finished turkey shed which is located at our local attraction Fairytale Farm (a sensory and learning wonderland for all the family) that was made using lots of the donated Ecobricks that was part of a scheme set up by Midcounties Co-operative earlier in the year.

It’s now a lovely home for these five baby turkeys!

All green

Standard

Tuesday 10th to Wednesday 11th September

I couldn’t help but say to one of my customer’s at work while he was unloading his trolley onto the conveyor belt, today you match your shopping!

Two lettuces, three avocados, two bags of frozen peas …

(By the way, pic above is not my actual customer!)

Good job he was one of my regulars!

It made me laugh anyway 🀣

Organ Donation Week

Standard

Its Organ Donation Week.

Here’s a throwback pic of me when I was recovering in the Queen Elizabeth Hospital Birmingham.

Goodness me when I think back to those tough times πŸ˜–

And now I’m back nagging my family πŸ€ͺ

Please join the NHS Organ Donor Register today if you haven’t done so already, ask everyone you know to join up too, and then all share your wishes with your family and friends. Make it easier for them at a tough time, as they have the final decision remember.

Thank you to my own two donors πŸ’—πŸ’™ and their families.

A blister

Standard

Sunday 4th to Saturday 31st August

I’ve just been plodding my way through August.

I’m just SO tired all the time, even when I first wake up in the morning 😴

Some days when I get back from work I’ve even been letting myself have half an hour’s nap in an attempt to feel slightly better for the evening.

Every single thing is so much harder to get through and so much more of an effort to do when you’re feeling so tired all the time. It really does my head in. There is so many things that I want to do …

I think I had one of the little viruses that I seem to get from time to time as I didn’t feel too good for a few days. I was determined that I would still get myself to The Big Feastival though to see Lewis Capaldi however bad I felt!

We had a really good weekend there. The weather was just SO hot.

We were right down at the front for Lewis, we were amongst the crowd raving to Grandmaster Flash, I loved that. Jess Glynne was good too. Then there was Elbow. I still love watching Alex James doing the late night dj set with his son Geronimo and the silent disco is such good fun πŸ’ƒ

I had a good time πŸ˜ƒ

And then August ended for me with a big blister!

I went for my regular skin check appointment at the Churchill Hospital in Oxford. I have this because of the immunosuppressive medication that I need to take. I am at a higher risk of getting skin cancer.

They first found solar keratoses (which are rough patches of skin caused by damage from years of sun exposure) on my arm a couple of years ago now I think.

‘They aren’t usually a serious problem and can go away on their own, but it’s important to get them checked as there’s a chance they might turn into skin cancer at some point.’

Because mine didn’t seem to have gone away I unexpectedly ended up having cryotherapy – ‘the application of extreme cold to destroy abnormal or diseased tissue’

And as a result my arm soon ended up looking like this!

😱

Apart from a sore arm I did enjoy my hospital appointment for once. And this is because I saw my dad’s younger brother there, who I haven’t seen for a couple of years. It made me feel very sad because my dad is no longer with us (nor my mum and I miss them both so much 😰) But it also made me feel happy while we were remembering all the family and it made my day to see him πŸ™‚

So this is Dennis, age 90, the only surviving member out of the nine brothers and sisters 😍

And that was August over with really.