Thursday 13th July

Clinic appointment day. Seems like I haven’t been for absolutely ages. Leah was on holiday from work so was able to take me 🙂

I got Leah to come for a walk around the outside of the hospital with me. We decided to be naughty and try and get in A&E so we could see what it was like in their department (as Leah works in A&E in a different hospital) but we couldn’t get much further than the door!

Leah’s sandal decided to break as we were walking. This was very annoying for her because she now had to spend the day like this :/ and annoying for me because we couldn’t go for a very long walk! It did make us laugh though as she had to struggle to keep it on her foot as she was walking along and it made quite a noise with each step she took 🤣

I first had an appointment for a chat with a lady from the Queen Elizabeth Hospital Birmingham Charity. She also brought along a university student with her who was doing work experience. She wanted to hear my story as she is thinking of maybe using it in some way to help promote Organ Donation Week in September. I know she has looked at my blog so just in case she reads this post too I just want to say thank you for our friendly chat (and I’m sorry but I do just need to mention it, I’m sure you have been told many times before, you have the most amazingly coloured eyes!)

While we were talking to the ladies I was looking around the restaurant where we were sat and I saw one of my hero surgeons Dr Mergental, sat at one of the tables. I was going to go and say hello but by the time we had finished the interview he had left ☹️

Myself and Leah then had a nice chilli for lunch, sat overlooking the atrium, so we could do a bit of people watching at the same time.

Time for my appointment. 

My liver was doing well 🙂 It looked like it was responding to the Urso (the medication I take to help the bile ducts in my liver). Of course this is a good thing, but may also just confirm a little bit more that PBC is back already in my new liver :/ 

My kidneys are still not 100% (these are affected by the immunosuppressants I have to take) but they just need to be kept monitored.

I have to start taking my blood pressure tablets again now (these were stopped by the doctors in Oxford in April when I lost all the blood) as this should help the kidneys a little.

I had been waiting for this appointment for what seems like ages so that I could ask Professor Hirschfield about all the blood results that were sent to them from my doctor’s surgery in April following my John Radcliffe Hospital stay. Do you remember I was forever going to the surgery to have my blood taken? But he couldn’t find anything on his system. I remember it being all such a big mix up at the time. Where did all my results go then? Obviously not where they should have been. Dangerous isn’t it really? What if my liver had really been affected and I needed some kind of treatment following those results …

I also checked with him if it was okay that I was still taking my hormone tablet every day, which I started taking to stop the heavy bleeding. He said it was okay for now but advisable to try and get everything finally sorted, ‘better to take as few tablets as you can’!

So back in a few months for my next appointment. At the moment I just need to be kept an eye on! 👁

A reasonably quick clinic visit today. I think it was an extra clinic that had been added in so it wasn’t as busy as it usually is.

I bought myself a new ‘love QEHB’ sweatshirt 😱 I did resist the bag! Maybe next time …

I also bought myself coffee and carrot cake to celebrate a good result!

Then we finally left for home. Because we didn’t have to hang around too much this meant I was back in time for my Thursday evening walk 👣 which was a nice 5 miler around Over Norton Park walls with Kate and Sue 🙂

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