Black trainers

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Tuesday 30th May to Friday 2nd June

Another week of mainly work and walking and my big toe just being so painful. I’ve had to change the shoes which I wear to work now as the boots I was wearing has a slight heel and this makes my feet hurt even more, so I now have some black trainers that I found in the back of my cupboard! A bit more comfortable 🙂 I’m definitely getting old 👵

Another week of my body just aching all the time 😩 and feeling so tired and making everything a bit harder to do.

Tuesday was a visit to Jackie for a cuppa ☕️

Some nice warm weather again this week so an extra Wednesday evening walk with Kate and Sue. A lovely sunny evening and a nice walk 👍

I made it to the John Radcliffe hospital to volunteer this week followed by a trip into Oxford for my health assessment meeting, which can you believe actually went ahead this time! Third time lucky. Somehow I don’t think I will be lucky with the result though, the way they assess you is just ridiculous and I don’t think will ever show the true effects that having PBC and two liver transplants has on you, both physically and mentally.

Of course I managed to squeeze in another bit of a walk around Oxford

and Thursday evening’s walk was up to the old airfield and back across the fields.

On Friday I just felt completely exhausted – that’s all I can say.

I found this bit of information on the Facebook page PBC Angels (Liver Disease), it comes from a clinic in America.

‘It’s not clear what causes Primary Biliary Cholangitis. Many experts consider PBC an autoimmune disease in which the body turns against its own cells.

How Primary Biliary Cholangitis develops –

The inflammation of PBC begins when T lymphocytes (T cells) start accumulating in your liver. T cells are white blood cells that are part of your immune system response.
Normally, T cells recognize and help defend against harmful invaders, such as bacteria. But in Primary Biliary Cholangitis the T cells invade and destroy the cells linings in the small bile ducts in your liver.

Inflammation in the smallest ducts spreads, in time, and destroys nearby liver cells. As these cells are destroyed, they’re replaced by scar tissue (fibrosis) that can contribute to cirrhosis. Cirrhosis is scarring of liver tissue that makes it difficult for your liver to carry out essential functions.’

Just a piece of useless information really but thought some of you might be interested to read it!!!

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