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Saturday 8th to Thursday 13th September

It turned out to be a bit of a ‘reminiscing’ weekend!

On Saturday we had gone to a shop in Witney. I knew we were somewhere near so I got Gary to take me back to the little car sales garage where we had gone one Saturday afternoon back in February 2015. Well I stayed in the car that day, I was feeling very ill, while he was looking round all the cars with Emma. It was then, when driving home in the car in the early evening, that I got the call from the Queen Elizabeth Hospital to say that they had a liver for me πŸ˜–

On Sunday we went for a walk around in Oxford. It turned out to be a lovely warm and sunny afternoon. It was also Open Doors weekend. This is the time when “many of Oxford’s significant contemporary and historic buildings open their doors to the general public, many of which do not usually do so. Discover hidden areas that are normally closed, climb tall towers or explore secret rooms.”

While we were just walking around there we met and said hello to the consultant that, after a couple of hospital stays to drain the ascites (a build up of fluid) told me that it was looking like transplant time and she was the one that contacted Birmingham to get the process started πŸ˜–

Sunday was also International PBC Day, a time to raise awareness. Thank you to the British Liver Trust for sharing my story again.

I still haven’t been feeling 100% and just so exhausted. I really don’t know why I agreed to work overtime one day 😩

I finally had my physio appointment for my hip. Apparently it was noticeable that I had much more movement on the other side. I’ve been given some exercises to do to see if that helps – just got to get myself to do them now …

And I finally had made the appointment to have another blood pressure monitor fitted. If I remember rightly it’s just to check how it’s doing and if I need to change the dose of medication I take. When she took the first reading it was very low. I think it did go up a bit throughout the day but as it blew up on my arm every half hour I really didn’t bother to have a look at every reading. I’ll just wait for the results.

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