What can I say about today 😗

Met one of the surgeons this morning. Charming man! and very professional. Told me in great detail what to expect with the transplant, some of which I understood, some not. It’s very real now, it could be happening …

I asked him about living donors as in the past we had been told it wasn’t an option but he disagreed and said their a good option – so if anyone’s interested?! A lot of serious thought has to go into it tho.

And then I actually got a visit, YAY, from my sister Lynda and her husband John. They bought me a latte coffee 😀

I also was visited by 3 people, 2 of who had undergone a liver transplant themselves and 1 who’s wife had, but many years ago. Lovely people, but not at all what I expected!! Will definitely be searching for others that are maybe a bit more current if you know what I mean?!

Oh I also face timed my two wonderful daughters who seemed most disinterested in me. But they were waiting for their friends to knock and take them to the pub!! Missing me aren’t they. One just kept laughing at me, the other just sat looking!! What else are daughters for. Oh and Leah in response to your comment about me not being there to ask you strange questions, I will be back, I think I have been texting you a few still and always will, and as you weren’t available earlier I have asked the surgeon some today, poor man😁

So most of today I have spent lounging around on my bed, which was fine this morning as very sleepy and not that great again. But I seem to come alive at night so do you know what I’m going to do now. I’m going to go and explore the hospital etc and hopefully come back via a shop so I can get some nice goodies. So wish me luck as I am a bit unsteady on my feet, off I go …..

Consent form for transplant signed. Aaaargh. Terrified 😦 😦

So the co-ordinator turned up. Really nice, helpful lady. We have arranged a family meeting for Thursday morning. What actually might be happening to me is beginning to sink in. Terrified and tried to have few tears on my own when she left. But guess what – in comes a nurse wanting to take my blood pressure again. Because I had been watching the helicopter and I said about my daughter Robyn, who had to go in 1 after road accident, she started talking about her daughter who was very nervous of driving after she had a minor bump, her mother in laws car crash, then her daughters love life and how she went on Internet dating for a bit, then her daughters illness, her son, her husband. But all of this was in such great detail without hardly a breath being taken!! She was lovely but not quite what I needed just at that time 😕
And she also made me miss my other photo opportunity cos 5 minutes after the yellow helicopter taking off a red and yellow one arrived which was the same colour as Robyn went in and I wanted to show her. (Sorry Robyn)
Oh what fun 😆

Well I’m still here despite what happened yesterday. Still emotional and even more so as the day has gone on.

Was woken at 6.30 to have my blood pressure etc taken. Then about 15 mins later to have my blood taken. But they didn’t wake me to have a much needed cup of tea and breakfast. So not a great start. But a bit later along comes a lovely young nurse and solves this problem for me! Not feeling too great today, blood pressure low, maybe that doesn’t help.

I get a porter just turning up saying I had to go for an ultrasound of heart. I have no idea when any of this is going to happen, but as he was so nice I didn’t mind!!!

Just as I take my first bite of my ‘very appetising’ lunch another different doctor arrives. Don’t think I have had a hot drink yet (apart from my early morning cup of tea) since I’ve been in here, they all have a knack of turning up at mealtimes or drinktimes!! Anyway I can’t remember all this doctor said at the minute, I do suffer with confusion I’m afraid. Yes I am going mad 😦 but it’s also a side effect of my liver problem. (I will fill you in with what I have actually got wrong with me at a later date). She was very surprised that the transplant co-ordinator had not been to introduce herself to me, that normally happens on Monday she said. I will send her an email to see if she knows you are in the hospital!!!!!

Then this happens … (sorry I haven’t worked out everything about transferring the photos from my phone at the minute so it seems there’s 1 big and 1 small one) and in a different place in my blog to where I actually wanted them

Saw junior doctor at about midnight last night. He took 17 phials of blood from me 😦 told me I could be home in couple of days, which confused me. Didn’t get much sleep. Then this morning, after my Rice Krispie breakfast, I had to walk myself to the lift and down long corridors to find ‘inpatient imaging’ to have chest X-ray. Got myself back to ward. So tired just wanted to rest when a porter came this time and I had to go for ultrasound

When he was bringing me back I looked in what I thought was my room and someone was led in my bed. It was my wonderful daughter Robyn!! who had come to visit me with her friend Lucie. Devil for confusing me. After a while we played monopoly and she even beat me at that. She took all my money and everything I owned. Even if I was in hospital 😜 Eventually she owned all the board with many many houses and hotels and Lucie very soon followed me out of the game. 

That was a small good part of the day. A doctor turned up with the juniors all gathered round him, and he asked me what I was doing as an inpatient here. I should have been an outpatient. I can’t remember what else he said cos that is just stuck in my mind. I DONT WANNA BE HERE ANYMORE. He has really really upset me

So I made myself a fruit salad 🙂

Urm – this is my lunch?

I eventually arrived at QE Hospital at I think about 8 this evening. I’m right on the very top floor. Higher than the helipad which I can see out my window. A military hospital so I will be looking out for the soldiers 😀 The hospital is newly built so my room is very posh really with ensuite shower room etc, floor to ceiling windows all along one side, plenty of space and chairs for ALL my visitors! But I’m on my own I like to be by the nurses desk so I can see and hear everything that’s happening and hear all the gossip!! 

Gary (the man of my dreams!!!!) drove me up here with my two brilliant daughters. Leah’s found out how the windows open, chose the food she would have off the hospital menu, fiddled with the tv, and tipped me up in my remote controlled bed. Robyn has mainly been sat making funny noises out of her nose 🙂

So they’ve put my name badge on, took my blood pressure, temperature, height, weight, so I’m ready to go …