Wednesday 23rd to Thursday 24th March
Work today. My poor old body was aching. I’m guessing as a result of the aqua aerobics on Monday
Then after being at home for a little while we set off for Oxford. A look around a few shops, into Ask restaurant for a lovely pasta meal and then it was time to make our way to the New Theatre where we were going to watch Goodnight Mister Tom 🙂
As always, something had to happen didn’t it? I got my bottle of drink out of my bag, unscrewed the lid and it all fizzed up and squirted out the top, over the leg of the lady sat next to me!!! Rather embarrassing but so funny too 😂
Anyway the play was good!!!
Thursday was spent at home trying to get a few things done as in the evening I was off to the theatre again, but this time to Chipping Norton Theatre. I was going to see Jessica Thom in Backstage in Biscuit Land which is touring around the country. It is raising awareness of Tourette’s syndrome in a lighthearted way. I found the show fascinating. I have never seen anything like it before. A tub of biscuits even got passed all around the audience so we could take one if we wanted! I really do recommend that you go to see the show if you get the chance.
Jess Thom has Tourette’s syndrome which is an inherited disorder where people can suffer with both physical and vocal tics. Many people with the condition isolate themselves to avoid the staring, which is very sad but I can completely understand why they would want to do this.
Jess at the moment involuntarily shouts out the word ‘biscuit’ thousands of times a day. Also hedgehog is another popular word. But these do change. Anything that she experiences can become a tic. If she tries to hold the words in it becomes uncomfortable like trying not to blink. When I have watched programmes on the TV about this in the past, the people I have seen all seem to shout out swearing words, which I do think is what most people associate the condition with and shows Tourette’s in a completely different way. But only 10% of people with the condition actually swear. I had no idea about the fact that people can also get involuntary physical movements too. Jess constantly hits her own chest and wears padded gloves to protect her knuckles. And now she also needs to be in a wheelchair as her legs twitch so badly. I did think to myself while I was sat watching the show just how exhausting this all might be?
Jess is also known as Touretteshero, which she created to make it easier to talk to children about Tourette’s. This month she is staging a Tourette’s awareness day at Tate Britain. She also raises awareness through her blog Touretteshero and her website.
It can’t be easy. I think she is doing a great job 🙂