Monday 13th to Wednesday 15th March
Monday. Clinic day. Robyn was taking me to Birmingham today 🚙
It was a nice day. I managed to persuade Robyn to come for a bit of a walk around the outside of the hospital with me, but then she got a bit tired and fed up with it so she went to find and save our usual ‘picnic bench’ inside the atrium while I carried on walking for a little bit more! Lunch on the picnic bench. Then we had a very quick meeting with the QE fundraising lady, as hopefully she might be helping to promote my #walk1000miles challenge.
I have set up a Justgiving page now, as I thought I might as well try and raise some money while I am doing all this walking anyway. If you would like to help me and donate to Queen Elizabeth Hospital Birmingham Charity click on the logo that you can see in the column to the right of my blog. That would be just great 🙂
Time for my clinic appointment. So my liver’s doing well. My consultant was pleased. Apart from the one result, which seems to have responded to the Ursodeoxycholic Acid tablets I now take, which also kind of adds to the fact that PBC may be back It’s now the medication I have to take which seems to be causing me my problems. The tacrolimus I have to take to suppress my immune system so that my body doesn’t reject my liver, is upsetting my kidneys. I think as a result of that my blood pressure is high. I am taking Amlodipine to lower my blood pressure, but this now seems to be causing my legs and feet to have fluid retention, which is uncomfortable. I have too much uric acid in my blood, this may be because my kidneys are not filtering enough of it. I take Allopurinol to try and help with this. Too much uric acid in your blood can lead to gout, which is maybe the cause of the pain in my feet. Nerve damage was also mentioned as a possible cause of this, and there is a test that can be done for this which I may have 🤔
So – I have to change my blood pressure medication in two weeks time to Losartan Potassium to see if this stops my fluid retention. Then I have a separate appointment with a kidney consultant coming up in April, it’s all timed so that they will be able to then check how my body has reacted to these tablets, see how my blood pressure is doing, and I guess they will be able to tell me in much more detail just how my kidneys are doing with everything. So it seems like I just have to put up with my fluid and foot pain for a bit longer (not easy when you are trying to #walk1000miles 😳) and I just need to keep taking the Urso and hope that it keeps PBC a little more under control for a bit longer too!
Thank goodness it was now the time we had been waiting for all day. We were going up to the ward to see our friend Alex, who has just had her third liver transplant. She was in hospital at the same time as me, and unfortunately has become so very ill in the two years that have passed that she already needed another new liver 😫
It was good to see Alex looking so well. I think I was still down in intensive care a week and a half after my transplants 😏 It was just great to see her.
Back down to pharmacy to pick up my tablets and then we could finally head for home. A long day.
Tuesday, work. Then I walked down to my friend Jackie’s house to have a cuppa with her ☕️ and I finally got to give her birthday present. Then after a while we ended up taking her dog Alfie 🐶 out for a little walk too.
Wednesday, work again! A sunny walk with J&H and today Leah was able to join us too. She wasn’t at work today as she had been on important business! More on this to follow at a later date …
Dog blood donors needed. Yes, really! Have you ever thought about this? I know I haven’t. Pet Blood Bank – ‘Similar to the human blood service, dog owners kindly bring along their much loved canine companions to give blood at one of our many sessions across the country’.
I 😍 this. Urm – Robyn???
And these –
are drawings 😱 Very clever.